Patient Experience

From the Blog

Mary Ellen’s Story: Groundbreaking Treatment Improves Quality of Life for Devastating Down Syndrome Condition

Down syndrome regression disorder (DSRD) is a rare but serious disorder that causes previously...

Oct 24, 2023

From the Blog

A Milestone Birthday: Once Conjoined Twins Turn 1

For Amanda Arciniega and James Finley, parents of previously conjoined twins, 1-year-old AmieLynn...

Oct 3, 2023

From the Blog

Micro-Preemie Born at the Start of the COVID-19 Pandemic Defies All Odds

At the start of the COVID-19 pandemic in April 2020, the world was beginning to shut down. But it...

Sep 6, 2023

From the Blog

Plastic and Reconstructive Surgery: A Life-Changer for Children

There is often the misperception that “plastic surgery” means cosmetic surgery. Plastic and...

Aug 22, 2023

From the Blog

Collaborative Care Cures Infant’s Rare Congenital Anomalies

When North Texas mom Liberty Riggs was pregnant with her third child, Seamus, she learned he had...

Aug 8, 2023

From the Blog

Knowledge is Power: Early Detection Saves Teen’s Life

Family medical history is essential in helping doctors diagnose and treat patients and potentially...

Jul 18, 2023

From the Blog

Pediatric Teleneurology Provides Patients Virtual Access to Neurological Care

I’ve spent decades caring for children with neurological issues in offices and hospitals. However,...

Jun 20, 2023

From the Blog

Mikey's Story: Surviving a Pediatric Brain Injury

At just two months old, Mikey Pizzo of Ventura, California, suddenly stopped breathing while in his...

Jun 13, 2023

From the Blog

From Baby to Man: A Life-Long Journey with Marfan Syndrome

Various congenital and acquired medical conditions can have life-long health implications. Such is...

May 16, 2023

From the Blog

Conjoined at Birth: When One Becomes Two

The phrase “joined at the hip” has taken on a new meaning for AmieLynn Rose and JamieLynn Rae...

Mar 2, 2023